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I have the state paying $1,300 a month.

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Start with volunteer help. Ask family, friends, members of your faith community... for assistance. After asking these people, look into paid helpers from home health agencies and local government may have programs too. Check you insurance to see which services are covered.
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My dear,
Please confer with your PCP ; he/ she should provide you with a " level of care needs assessment" and a case manager/ usually a licensed social worker who will along with the recommendation from your PCP provide you with assistance to establish the care that you need at home and with transportation to/ from treatments. I am honestly very surprised if this has not already been referred to you. Please reach out immediately to your PCP, share your needs and ask for referral to a case manager. The dialysis service that provides your treatment may also be able to help you communicate with the referral needs.
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care.com or Visiting Angels
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pooter: Your town's Council on Aging should be able to assist you as they should have on staff an elder case worker and also a social worker. I am surprised that your dialysis center did not set you up with transportation to and from dialysis three times per week.
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A home caregiving agency would be a good place to start. Most of them insist on a minimum of 4 hours.

Personally I have used "Home Instead" & "Concierge Care" for my parents.
An agency is good because if your regular help calls out a substitute will be sent.

To use up your time slot the caregiver could do light housework while waiting to pick you up.
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For help in the home you are likely to have to hire Home Care help. Maybe you could arrange that help on dialysis days and the aide could also take you to dialysis.

There might be community options for dialysis transportaion like senior service volunteer or church organizations who provide transportaion to medical appointments, including dialysis, but drivers will not be helping you shower and get dressed.

For help with personal care you are likely to have to hire in home help. Most in home aides have 3 or 4 hours minimums. The community or church organizations might know of local people who would be willing to work for shorter shifts.
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Contact a homecare agency and your state caseworker. This forum is not a homecare agency.
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Mjustice98 Jul 2023
Actually this forum encompasses aging care, her question is appropriate your response sounds like you need a nap.
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How old are you? Do you receive Medicaid, if so contact your caseworker and see of you can get "in home help". They also supply transportation to appts. As Alva says, check where you get ur dialysis done to see if they can help you with transportation back and forth. Office of Aging may help too. Red Cross has volunteers that help with transportation.
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Loopy, your dialysis center should have some connection to Social Worker who can help you access some help. You should also call your local Council on Aging. You can call your doctor also and tell him you need help with accessing some more support.

You don't say if you have any family support?
Do you have a disability case worker or anyone else to contact?

At some point your needs may be too acute to stay living on your own, and you may need in facility care. They will have easier transport for you, more ease with meals and a.m. care.

I hope others have more recommendations for you.
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LoopyLoo Jul 2023
I think you meant to say Pooter (excellent user name, I think!).
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Huh?

I am guessing you mean you get $1300 in disability, have dialysis three times a week and need help with morning routines. It might help to tell us what city you live in, or if you are outside the US.
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